Stroke, Vol 24, 320-327, Copyright © 1993 by American Heart Association
R de Haan, N Aaronson, M Limburg, RL Hewer and H van Crevel
BACKGROUND AND PURPOSE: Little attention has been focused on quality of
life in stroke outcome research. The purpose of this review is to outline
the meaning of the concept, describe important methodological issues and
methods of assessment, review existing quality of life measures, and
discuss criteria for selecting an appropriate instrument. SUMMARY OF
REVIEW: The following 10 quality of life instruments were reviewed: COOP
Charts; Euroqol; Frenchay Activities Index; Karnofsky Performance Status
Scale; McMaster Health Index Questionnaire; Medical Outcomes Study 20-Item
Short-Form Health Survey; Nottingham Health Profile; Quality of Life Index;
Quality of Well-being Scale; and the Sickness Impact Profile. They were
evaluated in terms of length, time needed to complete, content, scoring,
and psychometric characteristics. CONCLUSIONS: Emphasis should be placed on
further psychometric evaluation of existing quality of life measures rather
than on generating new instruments. There is particular need for
supplementary data on the responsiveness of the instruments to changes in
patients' clinical status over time. The choice of a suitable quality of
life instrument should be based not only on psychometric properties but
also on careful consideration of the research question, the relevance to
the objectives of the study, the feasibility of the instrument, and the
specific characteristics of the stroke patients under investigation.
ARTICLES
Measuring quality of life in stroke
Department of Neurology, Academic Medical Center, Amsterdam, The Netherlands.
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