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Original Contribution

Functional Status and Patient-Reported Outcome 10 Years After Stroke

The Lund Stroke Register

Ann-Cathrin Jönsson, Hossein Delavaran, Susanne Iwarsson, Agneta Ståhl, Bo Norrving, Arne Lindgren
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https://doi.org/10.1161/STROKEAHA.114.005164
Stroke. 2014;45:1784-1790
Originally published May 6, 2014
Ann-Cathrin Jönsson
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Hossein Delavaran
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Susanne Iwarsson
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Agneta Ståhl
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Bo Norrving
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Arne Lindgren
From the Department of Health Sciences (A.-C.J., S.I.), Department of Clinical Sciences, Lund, Neurology (H.D., B.N., A.L.), and Department of Technology and Society (A.S.), Lund University, Lund, Sweden; and Department of Neurology, Skåne University Hospital, Lund, Sweden (H.D., B.N., A.L.).
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Abstract

Background and Purpose—Long-term studies of outcome after stroke are scarce. Our aim was to study functional status and patient-reported outcome 10 years after a first-ever stroke.

Methods—Ten-year follow-up was conducted among the survivors from a population-based group of 416 patients included in the Lund Stroke Register, Sweden, between March 1, 2001, and February 28, 2002. The Barthel index was used to assess the functional status and the modified Rankin Scale to assess the degree of disability. The EQ-5D scale was used for survivors’ self-reports about health outcome and the specific Short-Form 36 (SF-36) question for rating their overall health. The patients also reported their frequency of physical activity.

Results—Among 145 survivors 10 years after stroke (median age, 78 years), 59% were men, 90% lived in their ordinary housing, 73% were assessed as independent, and 71% had no or slight disability. The need of assistance with mobility and self-care was reported by 14% and with usual activities by 22%. Moderate pain was reported by 39%, and 4% had a high degree of pain. Moderate anxiety/depression was reported by 28% and high degree only by 1%. Overall health status was reported in positive terms by more than two thirds of the survivors. Almost half the cohort reported the same frequency of physical activity (≥4× weekly) as before stroke onset.

Conclusions—This study indicates that 10-year stroke survivors in Sweden are mostly independent in daily activities and report good overall health and frequent physical activity, although half of them are ≥78 years.

  • long-term survivors
  • patient outcome assessment
  • physical activity
  • recovery of function
  • self report
  • stroke
  • Received February 25, 2014.
  • Revision received March 31, 2014.
  • Accepted April 7, 2014.
  • © 2014 American Heart Association, Inc.
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    Functional Status and Patient-Reported Outcome 10 Years After Stroke
    Ann-Cathrin Jönsson, Hossein Delavaran, Susanne Iwarsson, Agneta Ståhl, Bo Norrving and Arne Lindgren
    Stroke. 2014;45:1784-1790, originally published May 6, 2014
    https://doi.org/10.1161/STROKEAHA.114.005164

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    Functional Status and Patient-Reported Outcome 10 Years After Stroke
    Ann-Cathrin Jönsson, Hossein Delavaran, Susanne Iwarsson, Agneta Ståhl, Bo Norrving and Arne Lindgren
    Stroke. 2014;45:1784-1790, originally published May 6, 2014
    https://doi.org/10.1161/STROKEAHA.114.005164
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