Abstract W P270: Impact of a Family Participation Program on Perceived Respect, Collaboration and Support
Background/Issues: Strokes are the leading cause of disability in the United States. Family centered care is a delivery model that can remove barriers to family participation in care.
Purpose: To evaluate the impact of a family participation program on perceived respect, collaboration and support of family members of Intensive Care Unit (ICU) stroke patients.
Methodology: This study was an experimental, post-test only design. The control group included 35 family members of stroke patients in the ICU who received usual care. The intervention group included 36 family members of ICU stroke patients who received an educational program on stroke care, instructions on providing safe care, and strategies to facilitate family participation. Study outcomes included family perception of respect, collaboration and support.
Results/Lessons learned: The majority of family members were female (72.1%), children of patients (56.3%) and had previous experience with a family member in ICU (63.8%). Most patients had an ischemic stroke (62.0%) and were discharged to sub-acute/nursing home care (32.4%) and home (29.6%).
Characteristics of the study sample were similar for both groups except that there were more male family members in the control group (40.6% vs. 16.7%).
In a bivariate analysis, as one of the elements of collaboration, family members in the intervention group perceived that they were significantly less overwhelmed by the information given to them than those in the control group (24.2% vs. 63.6%; X2=10.40; p=.001). The perception of family members’ respect, collaboration and support experienced by each group was not statistically significantly different. Children caring for their parents had significantly lower perception of respect and collaboration than other types of family members.
Conclusions: Families in both groups had similar levels of perceived respect, collaboration and support. Usual care in the ICU may already meet these family expectations. However, future studies are needed to examine the effectiveness of family participation among children of patients, who seem to have the lowest levels of perception of respect, collaboration and support.
Author Disclosures: D. Milkosky: None. D. Durand: None. D. Reehil: None.
- © 2014 by American Heart Association, Inc.