Abstract NS17: Caregiving Needs of Family Caregivers of Latino Stroke Survivors
Background/purpose: Latinos are at higher risk for stroke at a younger age due to multiple factors and stroke care is usually provided by family members in the home setting (familism). Caregiver information is procured in various ways; more often via “word of mouth” from family/friends versus healthcare providers. Culture, religion, and knowledge of stroke/resources or lack thereof, all impact the Latino caregiver. The purpose of this study was to examine perceived needs and resources of family caregivers of Latino stroke survivors.
Method: Ethnography was used to examine the perspectives/practices of Latino stroke caregivers. Participants were solicited from a Stroke Support Group in Southern CA. Data were collected via a focus group interview of six family caregivers in Spanish/English after informed consents were signed. Interview data/field notes were recorded. Thematic analysis of the interviews /notes was performed.
Results: The mean age of the caregivers was 35 years. The average number of daily care hours was reported as 10-12. All were new caregivers within the last 12 months. Three themes were revealed. The first theme was, “caring for family.” All caregivers received some information; however few sought outside resources related to language, finances, distrust of outside caregivers, or transportation. Caregivers served as “gatekeepers” regarding the stroke survivors’ health. Another theme was, “hope for survivor’s recovery.” Although some caregivers experienced fatigue and stress, they were optimistic for their loved one’s recovery. The third theme was, “what’s next?” Caregivers often did not know where to access resources beyond the MD office or clinic; expressed anxiety about outside services, and usually relied solely on family/friends for information and support.
Conclusions: Stroke family caregivers need providers to look “within culture “and be sensitive to the needs of the Latino family; provide caregiver classes in Spanish/English that highlight stroke/caregiver information, identify informal support, and seek affordable community options for services, such as stroke support groups in Latino communities; all of which can enhance the caregiver’s experience and promote positive stroke outcomes.
Author Disclosures: S. Vaughn: Consultant/Advisory Board; Modest; Hollister,Inc.
- © 2015 by American Heart Association, Inc.